Its midnight and I’m sitting here in pain and feeling very sorry for myself and waiting for pain medicine to take effect. Not a normal feeling for me since I consider myself to be a generally happy person. I’ve had my moments of being down but usually bounce back pretty quickly.
Right now I’m just feeling sorry and I’m not going to beat myself up over it.
I’m in pain, and I’m dizzy. Yesterday was another visit with another Johns Hopkins doctor on my journey to discover what the heck is causing my abdominal pain. This doctor did a thorough exam (causing quite a bit of pain in the process), then told me he didn’t think it was anything related to his specialty. He said if I wanted a second opinion I could see his associate. I just said that he was the second opinion.
I have another appointment with another Johns Hopkins specialist next week. Depending on that will determine if I go for a third opinion with the other department.
Ugh… sometimes it feels like life revolves around my doctor appointments! I am almost ready to just accept the label of chronic pain and get on with life. They did say they could do blocks or freezes or something. The blocks could work for a month to 6 months. I think even a month without pain would be a blessing.
I know that I’m dizzy most of the time from the Migraine associated Vertigo and all the rest of the symptoms that go along with that but I know what’s causing it so I’m managing it. Not knowing what’s causing my pain is just insane. How hard is it to find out what this is???
Meanwhile, I pre-medicate before I do anything that could possibly start off the pain – like riding the motorcycle with my husband, exercising, walking any distances, lifting, climbing the up and down the stairs too often during the day, and so on. The list is endless. Pre-medicating works but it does dull my enjoyment of life. Now you see why I want to find out what’s causing it? Pain can be brought on by just about anything or nothing at all. You haven’t lived until you’ve been awakened in the middle of the night in agony… (Can you see me rolling my eyes?)
Ok, I feel better now. Thanks for letting me talk it out.
If you’re suffering from an invisible disease or chronic condition, there are many support groups exist. There are several on Facebook and I’ve listed 3 of them that I like.
https://www.facebook.com/groups/455718637847013/ INVISIBLE ILLNESSES, Fibromyalgia, Chronic Pain, MS, Lupus, etc. Support
https://www.facebook.com/groups/52537205047/ Migraine associated Vertigo (dizziness)
https://www.facebook.com/groups/33886942501/ National Invisible Chronic Illness Awareness
Meanwhile, please be well and if you need to talk, feel free to reach out to me.
Thanks for listening, Kathy